- Newsgroup:
listserv@vm1.nodak.edu
Send a note to the listserv. Leave subject line blank. In the text, write SUBSCRIBE DOWN-SYN
This newsgroup is read by parents, siblings, etc, of people with Down syndrome all over the world. It's a great place to find out more and to ask questions. I highly recommend it.
- FAQ:
send email to: PMWilson@aol.com
Pam has a child with DS, and she has a FAQ just for new parents. She can also tell you about the AOL Down syndrome group. They have several chats each week about life with a person with Down syndrome. It's worth getting aol just so you can join the group!
-Web:
Check out Miranda's web page for links to pages about Down syndrome. http://www.math.ohio-state.edu/~landeck/miranda.html (All lowercase is important)
- National Organizations
The National Down Syndrome Congress 1-800-232-6372
The National Down Syndrome Society 1-800-221-4602
Contact both of these places for a listing of local parent support groups (wonderful!), and for their new parent packs, with lots of informative pamphlets.
- Magazine:
DS Today 516-654-3242
- Books:
* Babies with Down Syndrome: A New Parent's Guide. Karen Stray-Gundersen, ed.1986. Woodbine House. ISBN: 0-933149-02-6 $ US 14.95
A great beginning book about DS for parents. Lots of great, reassuring pictures.
* A Parent's Guide to Down Syndrome: Toward a Brighter Future. Siegfried M. Pueschel. 1990. Paul H. Brookes. ISBN: 1-55766-060-3
Lots of the same info and more great pictures. I would read this one next.
* Count Us In: Growing Up With Down Syndrome. Jason Kingsley and Mitchell Levitz. 1994. Harcourt Brace. ISBN:0-15-622660 US $ 9.95
Written by two young men with Down syndrome, this excellent book will give you a good idea of what life is like from their perspective.