This page was last updated on September 3, 2001.
Many links useful for parents who have received a prenatal diagnosis of a disability can be found on the Disability page of this site. Also potentially useful are the sites on the page for Grief and Coping with Neonatal Loss and Infertility.
Abiding Hearts is an organization for women who are continuing a pregnancy after a diagnosis of a fatal or short-life-expectancy birth defect. Their goal is to support parents as they make decisions regarding the birth of their child, funeral or memorial preperations, or how to spend whatever time they will have with their child. They also try to work with hospitals and patient-right advocates to make sure the families are treated with respect and dignity, as well as to educated care-givers as to the special needs of these families.
The mailing address for Abiding Hearts is P.O. box 5245 Bozeman, Montana 59717 (406)587-7421 or (205)595-1503.
Parents who have interrupted a pregnancy after prenatal diagnosis can visit A Heartbreaking Choice, a new web site with articles and resources for parents who have been in this unfortunate situation.
Robin Elise Seibert's Pregnancy, Reproduction, and Health Education page has many other FAQS and links to other sites with information about pregnancy. This is one of the most comprehensive childbirth and pregnancy sites on the net.
DONA's Homepage has information about doulas (labor support people).